A few things I have learned as someone with full body RSD/CRPS

No matter what, I will never be able to have everyone in my life understand my pain

25/08/2013 18:28
Complex Regional Pain Syndrome, formerly known as Reflex Sympathetic Dystrophy. They renamed this complex and mysterious disease, in an attempt to make it easier to understand and identify. No matter what they call it, this disease remains for the most part, unknown and unpredictable.  For...

I have a disability, but it does not have to define who I am, and all that I do in life.

25/08/2013 17:01
There are days when my RSD/CRPS wins the battle, and I can barely get out of bet, and definitely am unable to leave my home on those days. That does not mean that I give up and stop trying. What I cannot do today, I can do another day, and I will do almost anything to adapt my activities to be able...